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2nd Dietitians Workshop on PKU

2nd Dietitians Workshop on PKU
  • Endocrinology and metabolism
  • Phenylketonuria (PKU)
Workshop by Excemed
Thursday, Mar 22 2012
Rome, Italy

Accreditation

EACCME®

Event format

Workshop session
Registration status
Closed

Overview

Dietary restriction of phenylalanine is the mainstay of treatment of phenylketonuria (PKU). Other treatment options (i.e. BH4) used as an alternative treatment or in combination with diet therapy are also important. Aim of this workshop is to share practice, latest research and developments in the dietary management of PKU patients.

Learning objectives

  • Examine the management of PKU, particularly concerning issues of supplementation and assessment of nutritional status
  • Explore developments, latest research and progress surrounding diet therapy
  • Consider the many issues and challenges of dietary treatment and appraise different management strategies
  • Consider patient education and motivation

Accreditation details

Serono Symposia International Foundation (www.seronosymposia.org) is accredited by the European Accreditation Council for Continuing Medical Education (EACCME®) to provide the following CME activity for medical specialists. The EACCME is an institution of the European Union of Medical Specialists (UEMS), www.uems.net

The conference “2ndDietitians workshop on PKU” (March 22, 2012 - Rome, Italy) is designated for a maximum of 6 (six) hours of European CME credits (ECMEC). Each medical specialist should claim only those credits that he/she actually spent in the educational activity. EACCME® credits are recognized by the American Medical Association (AMA) towards the Physician's Recognition Award (PRA). To convert EACCME® credit to AMA PRA category 1 credit, please contact the AMA.

This program “2nd Dietitians workshop on PKU” (March 22, 2012 - Rome, Italy) has been submitted for CME accreditation from the Italian Ministry of Health (Ref. n. 12000636 - Medico chirurgo; Ref. n. 12000637 - Dietista).

Additional information

Learning effectiveness project

Serono Symposia International Foundation is conducting a Learning effectiveness project at selected meetings during 2011. The meeting 2nd Dietitians Workshop on PKU has been chosen to participate in this project.

Scientific programme

Session I Micronutrient status and PKU

Chairs: Kirsten Ahring,Denmark;Anna Maria Lammardo,Italy

 

Micronutrient intake vs nutritional biochemistry: does it all add up?

Anita MacDonald,UK | Video presentation

Session II Oral Presentations

Chairs: Kristina Motzfeldt,Norway;Eleanor Weetch,UK

Case study of R.P: Managing Levels in Toddlers with Diet and Sapropterin

Nicole Pallone,Canada

SMS text message reminder service for Phenylketonuria patients to monitor phenylalanine concentrations

Sara Boocock,UK

Trace element status in adult patients with phenylketonuria

Sara Boocock,UK

A model of comprehension of low Phe diet in a family with PKU child

Natalia Usurelu,Republic of Moldova

Session III Parallel workshops

Maternal PKU

Laurie Bernstein,USA

Maternal PKU

Eleanor Weetch,UK

Kristina Motzfeldt,Norway

Introducing Sapropterin with diet

Júlio César Rocha,Portugal

Introducing Sapropterin with diet

Margreet van Rijn,Netherlands

Amaya Bélanger-Quintana,Spain

Session IV Case Studies in PKU

Dosage of Sapropterin in overweight patients

Katharina Dokoupil,Germany

Managing a second diagnosis with Sapropterin

Kirsten Ahring,Denmark

CME provider

Kirsten Ahring

PKU Department

The Kennedy Centre

Bagsvaerd, Denmark

Amaya Bélanger-Quintana

Unidad de Enfermedades

Metabólicas

Servicio de Pediatría

Hospital Ramon y Cajal

Madrid, Spain

Katharina Dokoupil

Department of Metabolism and Nutrition

Dr. von Hauner Children's Hospital

University of Munich

Munich, Germany

Hulya Gokmen-Ozel

Faculty of Health Sciences

Department of Nutrition and Dietetics

Hacettepe University

Ankara, Turkey

Anna Maria Lammardo

Department of Pediatrics

San Paolo Hospital

University of Milan

Milan, Italy

Anita MacDonald

Dietetic Department

The Children’s Hospital

Birmingham, UK

Kristina Motzfeldt

Department of Pediatrics

Women and Children’s division

Section for specialized medicine

and unit for newborn screening

Oslo University Hospital,

Rikshospitale

Martine Robert

Hôpital Universitaire des Enfants

Reine-Fabiola

Brussels, Belgium

Júlio César Rocha

Centro de Genética Médica

Jacinto de Magalhães

Instituto Nacional de Saúde

Porto, Portugal

Margreet van Rijn

Section of Metabolic Diseases

Beatrix Children's Hospital

University Medical Center Groningen

Groningen, The Netherlands

Chair(s)

Anita Macdonald

Dietetic Department
The Children’s Hospital
Birmingham, United Kingdom

Faculty

Serono Symposia International Foundation adheres to guidelines of the European Accreditation Council for Continuing Medical Education (EACCME) and all other professional organizations, as applicable, which state that programs awarding continuing education credits must be balanced, independent, objective, and scientifically rigorous. Investigative and other uses for pharmaceutical agents, medical devices, and other products (other than those uses indicated in approved product labeling/package insert for the product) may be presented in the program (which may reflect clinical experience, the professional literature or other clinical sources known to the presenter). We ask all presenters to provide participants with information about relationships with pharmaceutical or medical equipment companies that may have relevance to their lectures. This policy is not intended to exclude faculty who have relationships with such companies; it is only intended to inform participants of any potential conflicts so participants may form their own judgments, based on full disclosure of the facts. Further, all opinions and recommendations presented during the program and all program-related materials neither imply an endorsement, nor a recommendation, on the part of Serono Symposia International Foundation. All presentations solely represent the independent views of the presenters/authors.

The following faculty provided information regarding significant commercial relationships and/or discussions of investigational or non-EMEA/FDA approved (off-label) uses of drugs:

Kirsten Ahring Declared no potential conflict of interest

Amaya Bélanger-Quintana Declared to be member of: Merk Serono PKU European Scientific Advisory board, European nutritionist expert panel and Kamper advisory board.

Laurie Bernstein Declared receipt of grants and contracts from Biomarin and Nutricia. Declared receipt of honoraria or consultation fees by Applied Nutrition and Nutricia.

Sarah Boocock Declared no potential conflict of interest.

Annet M. Bosch Declared receipt research grant by Danone. Declared to be member of a company advisory board: Merk Serono and Danone.

Katharina Dukoupil Declared receipt of grants and contract from Merck Serono. Declared receipt of honoraria or consultation fees by Merck Serono.

François Feillet Declared receipt of honoraria or consultation fees by Geuggue, Biomarin, Merk Serono and Nutricia. Declared to be member of Merck Serono and Nutricia advisory boards.

Hulya Gokmen-Ozel Declared receipt of honoraria or consultation fees by: Merck Serono.

Shauna Kearney Declared no potential conflict of interest.

Anna Maria Lammardo Declared no potential conflict of interest.

Anita MacDonald Declared receipt research grants from Nutricia, Vitaflo, Cambrooke Foods and Merck Serono. Declared to receipt of honoraria or consultation fees by Merck Serono and Nutricia.

Kristina Motzfeldt Declared to be member of European Nutritional Expert Panel in PKU Merck Serono. Declared participation in a company sponsored speaker’s bureau sponsored by SHS International.

Nicole Pallone Declared receipt of grants and contract from Biomarin and declared to be member of Canadian PKU and allied disorders Inc.

Júlio César Rocha Declared receipt of honoraria or consultation fees by Merck Serono. Declared to be member of the European Nutritionist Expert Panel on PKU – Merck Serono.

Friedrich K. Trefz Declared receipt of honoraria or consultation fees by Merck Serono. Declared to be member of EPG and KAMPER advisory boards.

Natalia Usurelu Declared receipt of grants and contracts from Association of Rehabilitation of Children with PKU, Association ”ACASA”, CORDAID and Janivo Foundations.

Margreet van Rijn Declared receipt of grants and contracts from Nutricia. Declared receipt of honoraria or consultation fees by Nutricia and Merck Serono.

Eleanor Weetch Declared no potential conflict of interest