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Dietary restriction of phenylalanine is the mainstay of treatment of phenylketonuria (PKU). Other treatment options (i.e. BH4) used as an alternative treatment or in combination with diet therapy are also important. Aim of this workshop is to share practice, latest research and developments in the dietary management of PKU patients.
Serono Symposia International Foundation (www.seronosymposia.org) is accredited by the European Accreditation Council for Continuing Medical Education (EACCME®) to provide the following CME activity for medical specialists. The EACCME is an institution of the European Union of Medical Specialists (UEMS), www.uems.net
The conference “2ndDietitians workshop on PKU” (March 22, 2012 - Rome, Italy) is designated for a maximum of 6 (six) hours of European CME credits (ECMEC). Each medical specialist should claim only those credits that he/she actually spent in the educational activity. EACCME® credits are recognized by the American Medical Association (AMA) towards the Physician's Recognition Award (PRA). To convert EACCME® credit to AMA PRA category 1 credit, please contact the AMA.
This program “2nd Dietitians workshop on PKU” (March 22, 2012 - Rome, Italy) has been submitted for CME accreditation from the Italian Ministry of Health (Ref. n. 12000636 - Medico chirurgo; Ref. n. 12000637 - Dietista).
Learning effectiveness project
Serono Symposia International Foundation is conducting a Learning effectiveness project at selected meetings during 2011. The meeting 2nd Dietitians Workshop on PKU has been chosen to participate in this project.
Session I Micronutrient status and PKU
Chairs: Kirsten Ahring,Denmark;Anna Maria Lammardo,Italy
Micronutrient intake vs nutritional biochemistry: does it all add up?
Anita MacDonald,UK | Video presentation
Session II Oral Presentations
Chairs: Kristina Motzfeldt,Norway;Eleanor Weetch,UK
Case study of R.P: Managing Levels in Toddlers with Diet and Sapropterin
Nicole Pallone,Canada
SMS text message reminder service for Phenylketonuria patients to monitor phenylalanine concentrations
Sara Boocock,UK
Trace element status in adult patients with phenylketonuria
Sara Boocock,UK
A model of comprehension of low Phe diet in a family with PKU child
Natalia Usurelu,Republic of Moldova
Session III Parallel workshops
Laurie Bernstein,USA
Eleanor Weetch,UK
Kristina Motzfeldt,Norway
Introducing Sapropterin with diet
Júlio César Rocha,Portugal
Introducing Sapropterin with diet
Margreet van Rijn,Netherlands
Amaya Bélanger-Quintana,Spain
Session IV Case Studies in PKU
Dosage of Sapropterin in overweight patients
Katharina Dokoupil,Germany
Managing a second diagnosis with Sapropterin
Kirsten Ahring,Denmark
Kirsten Ahring
PKU Department
The Kennedy Centre
Bagsvaerd, Denmark
Amaya Bélanger-Quintana
Unidad de Enfermedades
Metabólicas
Servicio de Pediatría
Hospital Ramon y Cajal
Madrid, Spain
Katharina Dokoupil
Department of Metabolism and Nutrition
Dr. von Hauner Children's Hospital
University of Munich
Munich, Germany
Hulya Gokmen-Ozel
Faculty of Health Sciences
Department of Nutrition and Dietetics
Hacettepe University
Ankara, Turkey
Anna Maria Lammardo
Department of Pediatrics
San Paolo Hospital
University of Milan
Milan, Italy
Anita MacDonald
Dietetic Department
The Children’s Hospital
Birmingham, UK
Kristina Motzfeldt
Department of Pediatrics
Women and Children’s division
Section for specialized medicine
and unit for newborn screening
Oslo University Hospital,
Rikshospitale
Martine Robert
Hôpital Universitaire des Enfants
Reine-Fabiola
Brussels, Belgium
Júlio César Rocha
Centro de Genética Médica
Jacinto de Magalhães
Instituto Nacional de Saúde
Porto, Portugal
Margreet van Rijn
Section of Metabolic Diseases
Beatrix Children's Hospital
University Medical Center Groningen
Groningen, The Netherlands
Serono Symposia International Foundation adheres to guidelines of the European Accreditation Council for Continuing Medical Education (EACCME) and all other professional organizations, as applicable, which state that programs awarding continuing education credits must be balanced, independent, objective, and scientifically rigorous. Investigative and other uses for pharmaceutical agents, medical devices, and other products (other than those uses indicated in approved product labeling/package insert for the product) may be presented in the program (which may reflect clinical experience, the professional literature or other clinical sources known to the presenter). We ask all presenters to provide participants with information about relationships with pharmaceutical or medical equipment companies that may have relevance to their lectures. This policy is not intended to exclude faculty who have relationships with such companies; it is only intended to inform participants of any potential conflicts so participants may form their own judgments, based on full disclosure of the facts. Further, all opinions and recommendations presented during the program and all program-related materials neither imply an endorsement, nor a recommendation, on the part of Serono Symposia International Foundation. All presentations solely represent the independent views of the presenters/authors.
The following faculty provided information regarding significant commercial relationships and/or discussions of investigational or non-EMEA/FDA approved (off-label) uses of drugs:
Kirsten Ahring Declared no potential conflict of interest
Amaya Bélanger-Quintana Declared to be member of: Merk Serono PKU European Scientific Advisory board, European nutritionist expert panel and Kamper advisory board.
Laurie Bernstein Declared receipt of grants and contracts from Biomarin and Nutricia. Declared receipt of honoraria or consultation fees by Applied Nutrition and Nutricia.
Sarah Boocock Declared no potential conflict of interest.
Annet M. Bosch Declared receipt research grant by Danone. Declared to be member of a company advisory board: Merk Serono and Danone.
Katharina Dukoupil Declared receipt of grants and contract from Merck Serono. Declared receipt of honoraria or consultation fees by Merck Serono.
François Feillet Declared receipt of honoraria or consultation fees by Geuggue, Biomarin, Merk Serono and Nutricia. Declared to be member of Merck Serono and Nutricia advisory boards.
Hulya Gokmen-Ozel Declared receipt of honoraria or consultation fees by: Merck Serono.
Shauna Kearney Declared no potential conflict of interest.
Anna Maria Lammardo Declared no potential conflict of interest.
Anita MacDonald Declared receipt research grants from Nutricia, Vitaflo, Cambrooke Foods and Merck Serono. Declared to receipt of honoraria or consultation fees by Merck Serono and Nutricia.
Kristina Motzfeldt Declared to be member of European Nutritional Expert Panel in PKU Merck Serono. Declared participation in a company sponsored speaker’s bureau sponsored by SHS International.
Nicole Pallone Declared receipt of grants and contract from Biomarin and declared to be member of Canadian PKU and allied disorders Inc.
Júlio César Rocha Declared receipt of honoraria or consultation fees by Merck Serono. Declared to be member of the European Nutritionist Expert Panel on PKU – Merck Serono.
Friedrich K. Trefz Declared receipt of honoraria or consultation fees by Merck Serono. Declared to be member of EPG and KAMPER advisory boards.
Natalia Usurelu Declared receipt of grants and contracts from Association of Rehabilitation of Children with PKU, Association ”ACASA”, CORDAID and Janivo Foundations.
Margreet van Rijn Declared receipt of grants and contracts from Nutricia. Declared receipt of honoraria or consultation fees by Nutricia and Merck Serono.
Eleanor Weetch Declared no potential conflict of interest
