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1st Dietitians Workshop

1st Dietitians Workshop
  • Endocrinology and metabolism
  • Phenylketonuria (PKU)
Workshop by Excemed
Thursday, Mar 24 2011
Lisbon, Portugal

Accreditation

EACCME®

Event format

Workshop session
Registration status
Closed

Target audiences

Dietitians
nutritionists
health professional

Overview

To share practice and to explore any potential developments in the dietary management of PKU.

Learning objectives

  • Examine the management of PKU with dietary treatment only
  • Discuss the manipulation and management of diet therapy in combination with drug therapy
  • Explore future developments and new technologies for improving dietary treatment and patient communication
  • Consider the many challenges of dietary treatment and appraise different management strategies
  •  

Accreditation details

Serono Symposia International Foundation (www.seronosymposia.org) has submitted this program Dietitians Workshop (March 24, 2011 – Lisbon, Portugal) for accreditation by the European Accreditation Council for Continuing Medical Education (EACCME). There is an official agreement for mutual recognition of CME credits between the European Accreditation Council for Continuing Medical Education (EACCME) and the American Medical Association (AMA).

Serono Symposia International Foundation (www.seronosymposia.org) has applied to the Royal College of Physicians, London, UK for CME accreditation of the conference Dietitians Workshop (March 24, 2011 – Lisbon, Portugal).

This program Dietitians Workshop (March 24, 2011 – Lisbon, Portugal) has been submitted for CME accreditation from the Italian Ministry of Health - Reference numbers: 13776 – 11005802 (physicians) and 13776 – 11005803 (dietitians).

Additional information

All Serono Symposia International Foundation programs are organized solely to promote the exchange and dissemination of scientific and medical information. No forms of promotional activities are permitted. There may be presentations discussing investigational uses of various products. These views are the responsibility of the named speakers and do not represent an endorsement or recommendation on the part of Serono Symposia International Foundation.

Scientific programme

Thursday, March 24, 2011

 

Plenary Session I: PKU management in 2011: a review of what we know and don't know and what  needs to be done.

 

 

Diet: Where are we now?

Chairmen: Anita MacDonald (UK); Martine Robert (Belgium)

 

Dietary management
Margreet van Rijn, Netherlands
Diet and sapropterin
Amaya Bélanger-Quintana, Spain
Case Studies: Challenging cases
Anne Daly, UK and Yvonne Rogers, Ireland

 

 

Plenary session II: Life with diet and PKU? How do we measure it?

Chairmen: Kirsten Ahring (Denmark); Hulya Gokmen-Ozel (Turkey)

 

Measuring Executive Function in PKU? How is it done? What are the best tests?
Stephan Huijbregts, Netherlands

 

 

Workshop sessions: Sharing practice in PKU

 

 

Workshop sessions I: Provision of care for diverse ethnic populations/groups

Chairmen: Anita MacDonald (UK); Hulya Gokmen-Ozel (Turkey)

 

Transcultural issues and ethnicity in PKU
Anita MacDonald, UK and Hulya Gokmen-Ozel, Turkey

 

 

Workshop sessions II: The challenges of maintaining dietary control in older patients?

Chairmen: Eleanor Weetch (UK); Heidi Zweers (Netherlands)

 

The challenges of maintaining dietary control in older patients
Eleanor Weetch, UK and Heidi Zweers, Netherlands

 

 

Workshop sessions III: Exploring nutritional complications: case studies and short reports

Chairmen: Martine Robert (Belgium); Annamaria Lammardo (Italy)

 

Long chain polyunsaturated fatty acids profile in plasma of PKU children
Annamaria Lammardo, Italy

 

 

Workshop sessions IV: Modern technology, communication and online educationsystems: can it improve care? (local, national and international initiatives): examples in particular

Chairmen: Kirsten Ahring (Denmark)

 

Modern technology, communications and online educational systems: Can it improve care?
Kirsten Ahring, Denmark

 

 

Plenary session III: The final say!

Chairmen: Kristina Motzfeldt (Norway); Eleanor Weetch (UK)

 

 

Summary of the workshops sessions

 

Workshop I summary
Workshop I
Workshop II summary
Workshop II
Workshop III summary
Workshop III
Workshop IV summary
Workshop IV

CME provider

Kirsten Ahring
PKU Department

The Kennedy Centre

Bagsvaerd, Denmark

Amaya Bélanger-Quintana
Unidad de enfermedades metabolicas

Servicio de Pediatria

Hospital Ramon y Cajal

Madrid, Spain

Katharina Dokoupil
Department of Metabolism and Nutrition

Dr von Hauner Children's Hospital

University of Munich

Munich, Germany

Hulya Gokmen-Ozel
Department of Nutrition and Dietetics

Hacettepe University

Ankara, Turkey

Anna Maria Lammardo
Department of Pediatrics

San Paolo Hospital

University of Milan

Milan, Italy

Anita MacDonald
Dietetic Department

The Children’s Hospital

Birmingham, UK

Kristina Motzfeld
Department of Pediatric Research

Rikshospitalet University Hospital

Oslo, Norway

Martine Robert
Hôpital Universitaire des Enfants

Reine-Fabiola

Brussels, Belgium

Júlio César Rocha
Centro de Genética Médica

Jacinto de Magalhães

Instituto Nacional de Saúde

Porto, Portugal

Margreet van Rijn
Section of Metabolic Diseases

Beatrix Children's Hospital

University Medical Center Groningen

Groningen, The Netherlands

Chair(s)

Anita Macdonald

Dietetic Department
The Children’s Hospital
Birmingham, United Kingdom

Faculty

Kirsten Ahring

PKU Department

The Kennedy Centre

Bagsvaerd, Denmark

Jean-Daniel Baki

Board of Directors

Serono Symposia International Foundation

Geneva, Switzerland

Amaya Bélanger-Quintana

Unidad de enfermedades metabolicas

Servicio de Pediatria

Hospital Ramon y Cajal

Madrid, Spain

Anne Daly

Dietetic Department

Birmingham Children’s Hospital

Birmingham, UK

Hulya Gokmen-Ozel

Faculty of Health Sciences - Department of Nutrition and Dietetics

Hacettepe University 

Ankara, Turkey

Annamaria Lammardo

Department of Pediatrics

San Paolo Hospital University of Milan

Milan, Italy

Anita MacDonald

Dietetic Department

The Children’s Hospital

Birmingham, UK

Kristina Motzfeldt

Department of Pediatric Research

Rikshospitalet University Hospital

Oslo, Norway

Martine Robert

Hôpital Universitaire des Enfants - Reine-Fabiola

Brussels, Belgium

Margreet van Rijn

Section of Metabolic Diseases

Beatrix Children's Hospital

University Medical Center Groningen

Groningen, Netherlands

Eleanor Weetch

Nutrition and Dietetics

National Society for Phenylketonuria UK  and Adult Metabolic Dietitian

Northern General Hospital, Sheffield

Barnsley, South Yorkshire, UK

Heidi Zweers

Department of Gastroenterology and Hepatology-Dietetics

Radboud University Nijmegen Medical Centre

Nijmegen, Netherlands

Serono Symposia International Foundation adheres to guidelines of the European Accreditation Council for Continuing Medical Education (EACCME) and all other professional organizations, as applicable, which state that programs awarding continuing education credits must be balanced, independent, objective, and scientifically rigorous. Investigative and other uses for pharmaceutical agents, medical devices, and other products (other than those uses indicated in approved product labeling/package insert for the product) may be presented in the program (which may reflect clinical experience, the professional literature or other clinical sources known to the presenter). We ask all presenters to provide participants with information about relationships with pharmaceutical or medical equipment companies that may have relevance to their lectures. This policy is not intended to exclude faculty who have relationships with such companies; it is only intended to inform participants of any potential conflicts so participants may form their own judgments, based on full disclosure of the facts. Further, all opinions and recommendations presented during the program and all program-related materials neither imply an endorsement, nor a recommendation, on the part of Serono Symposia International Foundation. All presentations solely represent the independent views of the presenters/authors.

 

The following faculty provided information regarding significant commercial relationships and/or discussions of investigational or non-EMEA/FDA approved (off-label) uses of drugs:

Kirsten Ahring Declared to be member of the European Nutritionist Expert Panel (ENEP).

Amaya Bélanger-Quintana Declared receipt of honoraria or consultation fees from Mead Johnson, SHS and Cassen and to bemember of Merck Serono PKU advisory board, Nutritional expert panel and Kamper advisory board.

Anne Daly Declared to be member of the advisory boards of BIMDG and NSPKU (non-profit organization).

Hulya Gokmen-Ozel Declared to be member of ENEP Group.

Annamaria Lammardo Declared receipt of grants and contracts from Merck Serono as ENEP Group member.

Anita MacDonald Declared receipt of research grant/posts from Nutricia and Vitaflo, of honoraria from Nutricia, Vitaflo and Merck Serono, member of Sapropterin PKU Advisory Board; Chair of ENEP; and Member of Nutricia

Advisory Board for IMD.

Kristina Motzfeldt Declared to be member of ENEP, European Nutritional Expert Panel in PKU, sponsored by Merck Serono and to be sponsored by SHS International for travelling expenses to a meeting in Metabolic in April

2011 in London (UK).

Martine Robert Declared no potential conflict of interest.

Júlio César Rocha Declared participation at the Merck Serono’s Satellite Symposium – SSIEM 2010 and to be member ofthe European Nutritionist Expert Panel – Merck Serono.

Yvonne Rogers Declared no potential conflict of interest.

Margreet van Rijn Declared no potential conflict of interest.

Eleanor Weetch Declared no potential conflict of interest.

Heidi Zweers Declared no potential conflict of interest.

 

The following faculty have provided no information regarding significant relationship with commercial supporters and/or discussion of investigational or non-EMEA/FDA approved (off-label) uses of drugs as of March 10, 2011.

Stephan Huijbregts