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  1. Frequently Asked Questions about PKU

    ... in PKU? How is dietary phenylalanine allocated in the diet? What is Glycomacropeptide? What nutritional complications ... (usually by heal puncture and using dried blood spots in special filter paper) in which Phe levels are measured. If high Phe ...

  2. 2nd Dietitians’ Workshop

    ... status of PKU patients issues arising from combining diet with sapropterin (tetrahydrobiopterin BH4) treatment working ... ‘we provide copious quantities of nutrients within our special protein substitutes, but it is the quality of that nutrient source that ...

  3. Perspective interview - Nicole Pallone

    ... (Rome, Italy) on managing blood Phe levels in toddlers with diet and sapropterin. The presentation featured ‘Patient Pallone’ who ... mental retardation associated with PKU and the need for a special diet was also a big concern. We were really worried about what it would ...

  4. Highlights of ESPKU annual meeting 2013

    ... frequently and dietary therapy adjusted accordingly. Of special interest was the discussion on the full range of issues related to ... amount of Phe-restriction should be maintained in the diet from the adolescence on in order to avoid behavioral disturbances, social ...

  5. Clinical management of phenylketonuria

    ... the only therapeutic approach to phenylketonuria (PKU) was diet. Although there has been continuous improvement in management of PKU ... and especially metabolic diseases for all age groups, with special interest and expertise in Phenylketonuria and Glycogen Storage ...

  6. 3rd Dietitians workshop on PKU

    ... high carbohydrate and fat but low protein content in their diet and in supplements, and reduced physical activity, because of ... media ; psychological support, especially in pregnant women; special access to hospital and care, including home visits ; frequent follow-up ...

  7. SSIEM Annual Symposium 2012

    ... a number of advantages over an amino acids (AA)-deprived diet as it provides: a better range of AAs in the blood, less protein ... that evaluated the ability of IMD parents at home to prepare special formulae. The study particularly looked at parents’ accuracy in: ...

  8. 2014 Annual Multidisciplinary European Phenylketonuria Symposium: PKU a lifetime of challenges

    ... challenges and solutions in the management of PKU, including diet and medical therapy, and possible future treatments Interpret  the  ... Consider  the  best  approaches  for  management  of  special  clinical conditions, such as maternal PKU or transition age and ...

  9. 3rd Dietitians’ Workshop

    ... information to assess the overall ‘health’ of the PKU diet is lacking. There is also a lack of knowledge about the impact of food ... in PKU can be related with the disease itself or with the special diet together with lifestyle behavior, said Prof Hulya Gokmen-Ozel3  ...

  10. Perspective interview - Friedrich Trefz (PKU treatment in adults)

    ... adults with PKU? 3. Are adult patients adherent to the diet? 4. What proportion of adult PKU patients are eligible for BH4 ... BH4 cofactor benefit adult patients? 6. Are there any special populations requiring particular care? 7. Why is phenylalanine ...

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