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  1. Frequently Asked Questions about PKU

    ... a mother affect her fetus during pregnancy? Can high phenylalanine enter the brain in PKU patients? What is the importance of ... of all/most foods eaten each day; or (ii) a phenylalanine exchange system. Different exchange systems are used worldwide (anything from ...

  2. SSIEM Congres report

    ... PKU Measurement of the standard deviation (SD) of blood phenylalanine ( Phe ) levels in patients with PKU may be a useful tool for ... failed to identify the amount of natural protein in one Phe exchange 50% were unable to correctly estimate by ‘eye’ the number of ...

  3. 2nd European Phenylketonuria Group (EPG) Symposium - Advances and Challenges in PKU

    ... of mild hyperphenylalaninemia Clinical trials with the phenylalanine ammonia lyase (PAL) enzyme substitution therapy Nutritional ... Foundation programs are organized solely to promote the exchange and dissemination of scientific and medical information. No forms of ...

  4. 3rd European Phenylketonuria Group (EPG) Symposium - Advances and challenges in PKU

    ... to escape from mental retardation. Dietary restriction of phenylalanine remains the mainstay of treatment but PKU is an active area of ... All EXCEMED programs are organized solely to promote the exchange and dissemination of scientific and medical information. No forms of ...

  5. XXV ESPKU Conference

    ... therapy by using recombinant pegylated Anabaena variabilis phenylalanine ammonia lyase (rAvPAL-PEG), a bacterial-derived Phe-ammonia ... (e.g. to-do and check lists). Constant collaboration, exchange of information and sharing of problems among PKU patients, families ...