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  1. From basic knowledge to daily management

    ... four years and over, when given the choice, prefer sweet foods over savory foods. This, explained Prof Anita MacDonald 3 , ... Ms Annemiek van Wegberg (University Medical Centre Groningen, Groningen, The Netherlands and Radboud University ...

  2. 3rd Dietitians’ Workshop

    ... of supplements may not appear high compared to natural foods, but in what form are these carbohydrates? How much is sugar? ... Martijn J. de Groot (Beatrix Children's Hospital, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands) ...

  3. Frequently Asked Questions about PKU

    ... down an amino acid called Phenylalanine ( Phe ) found in foods containing protein. High Phe may trigger brain-related problems ... of function lost due to mutation and can be used for medical treatment. Thus, BH4 (sapropterin) can in some PKU patients prevent ...

  4. Perspective interview - Nicole Pallone

    ... and so is she. Even though people occasionally offer her foods she can’t have, she knows well enough not to take them. We try to eat ... a “guinea pig”. ‘In the end, we decided that the medical knowledge was worthwhile and that, if she responded, Rosie’s life ...

  5. SSIEM Congres report

    ... estimate by ‘eye’ the number of Phe exchanges in common foods 40% and 80% respectively, were unable to correctly define a low Phe ... the first twelve years Dr Rianne Jahja of the University Medical Center (Groningen, the Netherlands) urged delegates to consider ...

  6. 2014 Annual Multidisciplinary European Phenylketonuria Symposium: PKU a lifetime of challenges

    ... The children increased their intake of higher protein foods such as processed meats, milk and dairy products but decreased their ... pharma-chaperons. Professor  Nicola Longo  from the Medical Genetics and Pediatrics at the University of Utah in Salt Lake City, ...

  7. Perspective interview - Ida Schwartz

    ... is improving thanks to greater prosperity and access to medical care. In the past, in some areas of Brazil, the main reasons for infant ... charge. For PKU, treatment is limited to supplying formula. Foods with low protein content are not supplied and so our patients do not have ...

  8. 2013 International Congress of Inborn Errors of Metabolism

    ... at the test but are treatable instead with diet plus medical therapy. The utility of sapropterin in adult patients and in ... in the intestine lumen, able to metabolise Phe in foods thus indirectly reducing its levels in blood. Further studies are needed ...

  9. Clinical management of phenylketonuria

    ... diet and then the separate treatments available, including medical therapies, gene, enzyme and cell therapies. Suggestions on how PKU ... of AFSSA (French Agency for the Security and Safety of Foods), he is a member of the national society for systematic newborn ...

  10. Profile – Mrs Eleanor Weetch

    ... Building bridges As Mrs Weetch had left the medical establishment to work for NSPKU we were interested to know why she ... acids analysis for example and each year we get different foods analyzed for Phe content so they can be assessed and included in the ...

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