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  1. 1st European Phenylketonuria Group (EPG) Symposium - Advances and challenges in PKU

    ... Enzyme replacement and gene therapy Compliance with the management of PKU Nutritional care of PKU ... rooms 16.15 PARALLEL WORKSHOPS WORKSHOP 1: Compliance with the management of PKU Chairmen: Peter Burgard, Germany - Anita MacDonald, UK • What is the definition of good compliance in PKU? • What is compliance with diet (compared with national ...

  2. Perspective interview - Laurie Bernstein

    ... this I think we have to be prepared to balance short-term compliance against the risk to long-term compliance posed by a breakdown in the relationship with the family.’ ...

  3. Perspective interview - François Feillet

    ... that are higher than the recommended range due to a lack of compliance with diet. However, he pointed out that there are issues with the ...

  4. Nutritional treatment and biochemical follow-up of PKU

    ... bone disease in PKU patients and the role played by diet, compliance and lifestyle. Language Undefined Resource ...

  5. Short Summary of the SSIEM Annual Symposium, 2018

    ... PKU LNAA mice studies treatment adherence and compliance Diet Specialty area(s) Endocrinology and metabolism ...

  6. XXV ESPKU Conference

    ... courses, conferences) with the ultimate goal of improving compliance to therapy and thereby improving clinical outcomes.   ... trained certified healthcare professionals can help improve compliance and neurological outcomes while enabling patients to lead a ...

  7. Perspective interview - Kirsten Ahring

    ... ‘We realised that the modem group really improved their compliance compared with patients who were asked to come in for hospital ...

  8. Frequently Asked Questions about PKU

    ... ease. In adolescents these problems lead to bad treatment compliance, as many patients do not want to feel any different from their ... frequency is related to aspects such as growth, infections, compliance with the treatment and other factors. Apart from this, we know that ...

  9. 2013 International Congress of Inborn Errors of Metabolism

    ... providing the audience with practical tools to improve compliance and subsequently outcomes. Experimental data were presented on ...

  10. Workshop sessions

    ... can help get better control sapropterin does not change compliance issues and may even require more attention from patients and ...

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