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  1. WS3: How to improve adherence to PKU treatment

    ... (PKU) Slide-kit WS3: How to improve adherence to PKU treatment Specialty area(s) Endocrinology ...

  2. Perspective interview - Laurie Bernstein

    ... Talks About the Need for Better Education To Improve Adherence Laurie Bernstein, Associate Professor in the Pediatrics Department ... of patients: what works in PKU’ and ‘How to improve adherence to PKU treatment’. While some have struggled to use the Internet ...

  3. XXV ESPKU Conference

    ... Trefz stressed. Wide fluctuations of Phe levels due to poor adherence to therapy seem to be more harmful than constant moderate-to-high ... pregnant to improve newborn health status. Ensuring adherence to treatment Only half of all patients with PKU have appropriate ...

  4. PKU: Latest advances in neurological and clinical research

    ... phenotypes, allowing for tailored diagnosis and therapy. Adherence to treatment can be one of the major problems in PKU management and ...

  5. Highlights of ESPKU annual meeting 2013

    ... of the therapeutic approach of the case. Dietary adherence in PKU is important for achieving positive outcomes with treatment, ... the safety of patients. There are many reasons for poor adherence, including stress from the restrictive diet, difficulties in managing ...

  6. Perspective interview - Ida Schwartz

    ... of adult patients about whom we know.’ The challenge of adherence Adherence to the PKU diet presents challenges to patients and the physicians ...

  7. Frequency of blood phenylalanine monitoring and point-of-care home blood phenylalanine monitoring devices

    ... test. 4 Unfortunately, research indicates that patient adherence with blood Phe monitoring decreases with age. Jurecki et al 5 ... Utah, 2004. García MI, Araya G, Coo S, et al. Treatment adherence during childhood in individuals with phenylketonuria: Early signs of ...

  8. 3rd Dietitians workshop on PKU

    ... in PKU patients Amaya Bélanger-Quintana (Spain) OP3: Adherence cases and challenges in adult PKU patients Margreet van Rijn (The ... (The Netherlands) 14.30 Questions and statements from adherence group Annet M. Bosch (The Netherlands) 14.45 Questions and ...

  9. SSIEM 2014 and PKU: A dietician's perspective

    ... between family structure, reaction to diagnosis and adherence to PKU treatment. They found that the initial family reaction to PKU ... of acceptance or rejection of the disorder and consequent adherence to treatment. They concluded that better early communication with ...

  10. 2nd Dietitians Workshop on PKU

    ... performed when there is a suspicion of altered diet or low adherence. Anita MacDonald (UK)  agreed that minerals levels are ... micronutrient status deteriorates with aging due to non adherence to diet and to protein substitute intake. Anita MacDonald (UK) ...

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